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Book Reviews – Human Rights and Disability Advocacy

Book Reviews - Human Rights and Disability Advocacy

The United Nations adoption of the Convention on the Rights of Persons with Disabilities (CRPD) constituted a paradigm shift in attitudes and approaches to disability rights, marking the first time in law-making history that persons with disabilities participated as civil society representatives and contributed to the drafting of an international treaty. On the way, they brought a new kind of diplomacy forward: empowering nongovernmental stakeholders, including persons with disabilities, within human rights discourse. This landmark treaty provides an opportunity to consider what it means to involve members of a global civil society in UN-level negotiations.

Human Rights and Disability Advocacy brings together perspectives from individual representatives of the Disabled People’s Organizations (DPOs), nongovernmental organizations (NGOs), indigenous peoples’ organizations, states, and national institutions that played leading roles in the Convention’s drafting process. The contributors provide vivid and personal accounts of the paths to victory, including stumbling blocks not all of which were overcome and offer a unique look into the politics of civil society organizations both from within and in its interaction with governments. Each essay describes the nonnegotiable key issues for which they advocated; the extent of success in reaching their goals; and insights into the limitations they faced. Through the plurality of voices and insider perspectives, Human Rights and Disability Advocacy presents fresh perspectives on the shift toward a new diplomacy and explores the implication of this model for human rights advocacy more generally.

Contributors: Andrew Byrnes, Heidi Forrest, Phillip French, Lex Grandia, Huhana Hickey, Markku Jokinen, Liisa Kauppinen, Mi Yeon Kim, Gerison Lansdown, Connie Laurin-Bowie, Tirza Leibowitz, Don MacKay, Anna MacQuarrie, Ronald C. McCallum AO, Tara J. Melish, Pamela Molina Toledo, Maya Sabatello, Marianne Schulze, Belinda Shaw.

1. A Short History of the International Disability Rights
Movement 13
Maya Sabatello
2. Our Lives, Our Voices: People with Intellectual Disabilities
and Their Families 25
Anna MacQuarrie and Connie Laurin-Bowie
3. Living in the Community, Access to Justice: Having the
Right Makes All the Difference 45
Tirza Leibowitz
4. Inclusion or Choice? Securing the Right to Inclusive
Education for All 58
Belinda Shaw
5. An Eye Toward Effective Enforcement: A Technical- Comparative
Approach to the Drafting Negotiations 70
Tara J. Melish
6. Children with Disabilities 97
Gerison Lansdown
7. Women with Disabilities: Th e Convention Through the
Prism of Gender 113
Mi Yeon Kim
8. Including Deaf Culture and Linguistic Rights 131
Liisa Kauppinen and Markku Jokinen
9. Imagine: To Be a Part of Th is 146
Lex Grandia
10. Indigenous People with Disabilities: The Missing Link 157
Huhana Hickey
11. At the United Nations . . . “Th e South Also Exists” 170
Pamela Molina Toledo
12. Voices Down Under: An Australian Perspective 188
Heidi Forrest and Phillip French
13. Monitoring the Convention’s Implementation 209
Marianne Schulze
14. Th e Role of National Human Rights Institutions 222
Andrew Byrnes
15. Th e New Diplomacy 239
Maya Sabatello

Book Reviews – Human Rights and Disability Advocacy


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